This conference is for families and persons who are affected by Holoprosencephaly (HPE), their extended families and caregivers. We welcome those who have loved and lost someone affected by HPE and will have special sessions dedicated to bereavement topics. The conference sessions will provide you with information you need to help you better manage the day-to-day life issues you and your family face when caring for or missing a child with HPE. This conference is presented by Families for HoPE, Inc. and the Carter Centers for Brain Research in Holoprosencephaly and Related Malformations.
For more information, visit http://cvent.com/events/2018-family-conference-on-holoprosencephaly/event-summary-262a6b0b88624ee9ad4ac1ff59de7330.aspx